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TOPIC: Scar question (some graphic pics)

Re: Scar question (some graphic pics)

11 years 1 month ago #1287868874
For a guy who is already obsessional about his deformed penis, to see it literally rotting off is about as bad as things can get mentally.

Yeah... for sure this is a problem. I was never ocd about my Dick before 2010 when peyronies started. Then, it grew slowly but never to the point I wanted 7" of Girth or something...it was mostly about getting back what I had. Unfortunately, this period has been dragging on since march 27....after already starting in 2010. At least it is very confined to one spot...but the uncertainty of how it will heal, if it will heal, if it will spread is making me very anxious. I can take my own vicodin...and that's a good idea - I might take it tomorrow. The problem is that cymbalta (which I am on) blunts the effects of everything, it seems. Soma is another seriously relaxing drug, but it stopped working when I started cymbalta. I asked for more benzos...they gave me more cymbalta...which continues to not do anything.

one of our members murdered someone during the stress of recovery from Necrosis

Holy shit...did he have the Necrosis like in those pictures where the whole penis is rotting off? Mine is about 1 cm x 0.5 cm....and the other spots are raised. So, it's annoying that I have (now) raised areas on the skin when before i had lumps under the skin. I guess they should go away... but I just feel like I never should've been in this position. Whatever I did in a past life to get peyronies at such a young age & then be one of the few people on this board with complications on top of it... i'd love to know...oh and then...getting it fixed in the usa (for $1200 so far) hasn't worked either! I keep saying to myself "you'll be normal by june" and "you'll be normal by july" and now it's "maybe august...or the fall..."

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Re: Scar question (some graphic pics)

11 years 1 month ago #1287877842
Make sure you do not over apply the silver nitrate. It can have some bad side effects if used too liberally. It is also used to melt warts.

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Re: Scar question (some graphic pics)

11 years 1 month ago #1287714002
Excellent report Restoration, I enjoy reading your detailed posts (accurate).

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Re: Scar question (some graphic pics)

11 years 1 month ago #1287655381
Thank you so much for the info! I am glad I know what to expect. I wonder if I went to a Urologist - if it would've worked out better since they know how to put tension on the penis so it stays closed despite nocturnal erections and stuff. I have a few more that I can bring to my uro - but there might not be a difference. My deglove scar was totally sealed by a Urologist. Well, either way, I need to end the celibacy - so maybe I'll just wait to heal and have a lumpy penis - and remove those in the fall if DMSO doesn't help them.

I had quite a bit of cautery at the end of the procedure to stop the bleeding, which surprised me given how small the area was...and I wondered if that added to the trauma there (red and bruised still). When I've had moles removed & even a lipoma (that was much larger and deeper on my back - my doctor said "I feel like a brain surgeon" during that...lol) - I cannot recall any cautery. It just was bloody for a while and I changed the bandages every couple of hours for the first day or 2. They cauterized my deglove scar, but that was a very big scar - like 3.5 inches...and I still have a hypopigmented burn from it (minor - but it's there). This Nodule excision was about 5mm I think...but now it looks big.

Well, I'm glad yours went back to normal...sounds like mine should too.The penis reduction line is great!

Here's the scar from the other side - it's healing perfectly!

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Re: Scar question (some graphic pics)

11 years 1 month ago #1288075228
Oh crap I just posted something I typed out & it said I must enter a message to post...gone now...oh well. I'll mention it later. I was just saying - it's pretty fucking weird that I had Peyronies at such a young age (which is a disorder <5% of the population) & then I got PMMA and had one of the worst complications on this particular board...and I was not even going for a big size or into "risky" territory with 30ccs of 30%. Then, I had complications from the Removal by a USA derm. I mean, we're in supernatural WTF territory here. Like, was I a serial rapist in a past life? is this karma? I am not even joking with this. I mean, every time I turn a corner and find a solution, it just results in more problems...and it's not like I am doing anything that crazy (except removing the nodules myself out of sheer exasperation - but those look better than the derm's removals...I'll post pics soon... hunkydory you're right, the scars are fading very well). The only "crazy" thing I did was go to TJ for a penis enlargement - but so did everyone else here who is fine! Yes, I am a little more high strung, but that doesn't affect Nodule formation & peyronies disease. If anything, that let me intervene early and knock out 1 Nodule under my shaft with Kenalog at 10 days (it's still there by the way - as firm PMMA, but smaller...it would've been pretty bad). I wish I got Kenalog in all of the nodules early on because after 3 weeks, there was no chance these would be disrupted. Anyway... that's all I wanted to say.

I should probably post a link to this whole thread in my journal so people can follow things. I didn't realize how long this issue (and thus, the thread) would drag on.

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Re: Scar question (some graphic pics)

11 years 1 month ago #1287860454
Here's some more. What do you think? If it seems crazy I did it myself, it's just because I have all the sterile equipment and epi and lidocaine. I used to do animal surgery that was actually fairly similar (except we used staples & my suture skills are pathetic - though I could practice a little & probably do just fine). One of my nastiest, deepest incisions healed GREAT just with steri strips. The other ones reacted to the suture material and seem to be delayed or just very atrophic (like an ice pick acne scar). I hope it fills in like yours did. I know this is all early, but since it's been going on since March 24 - it's making me nuts.





This bottom right one was the biggest mistake since my entry point Nodule here wasn't that bad...and the stitch reaction and scar are much worse (at least now at 3 weeks ). Maybe in a few months it will flatten...

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Re: Scar question (some graphic pics)

11 years 1 month ago #1287701222
I had two nodules removed by a doc in the usa - more details are here. One healed already, but one is just going very slow. The nodules were rock hard and not responding to Kenalog or 5fu. Under the microscope, they turned out to be 80% PMMA, so it's not a surprise that they never responded to Kenalog.

This is a slice of the Nodule magnified. The blue dots are nuclei of lymphocytes which is normal and leads to collagen building / fibrosis which produces Girth. The white dots are PMMA beads. There are some histocytes and multinucleated giant cells in this image, and other images have more. Each slice is a bit different...but this shows the packed PMMA beads which created the hardness of the Nodule. They should be spread out more, ideally.

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Re: Scar question (some graphic pics)

11 years 1 month ago #1287880423
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Who injected the PMMA to this guy?

You are a little douche.

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Re: Scar question (some graphic pics)

11 years 1 month ago #1288064744
Dr. Lemperle thinks it is a biofilm infection. The other plastic surgeon who used PMMA also thought there was an infection. The biofilm makes more sense due to the lack of swelling and pain...and the fact the PMMA was melted with the cautery and was just sitting there waiting to be colonized. Biofilms are extremely hard to treat since they are usually made up of many bacteria and they are resistant to oral antibiotics (usually). They also prevent wounds from closing - and a few pics I found online look pretty much the same as this.

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Re: Scar question (some graphic pics)

11 years 1 month ago #1287732971
Thanks CHL. I was gonna make a whole post about all the microscopic side of things, but I don't want to make the info confusing - and I'm not a pathologist. I met a really nice pathologist sit with me for 45 min and go over everything that she knew about the situation. She's never seen PMMA before but she's seen a lot of silicone leakage from breast implants and other things, so she said it sort of reminded her of that, just a smaller diameter of the particles. The reaction is similar in terms of how the body walls off the foreign particles (same with anything, even a splinter - silicone just looks like blobs too).

My wound (from above) never closed so I went back to the doc & he debrided and stitched again (now 4 weeks post Removal). I hope the PMMA in the tissue isn't affecting the wound closure. He's leaving the stitches in 2 weeks this time...which will mean the wound is taking 6 weeks just to close. But, I think by mid - july... I'll be normal-ish.

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Re: Scar question (some graphic pics)

11 years 1 month ago #1288072174
I think a big part of the problem with PE injectables is that the administering doctor really does not have the skill or experience to handle complications.

Injecting does not require a surgical suite or any of the equipment needed to treat people who run into trouble.

I am happy restoration has been very proactive getting the support and advice he needs to treat his case. I am sure his perseverance will pay off in the long run. And he sets a good example for the newcomers. It is important for new patients to know that things can and do go wrong. And when they do you have to advocate for yourself because in most cases, no one else will do this for you.

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Re: Scar question (some graphic pics)

11 years 1 month ago #1287871216
Wow, that's crazy. I have no idea who it is.

The pic I was talking about was from one of the journal articles posted here where the whole penis basically rotted off because PMMA was injected in a blood vessel.

Anyway, I was posting now because I was seeing the Dermatologist again. He put some silver nitrate on that spot...not sure why...I think it breaks down the excess tissue so healthier tissue can grow.

- For the ridges caused by the Sutures - if these don't go away he commonly treats them with Kenalog
- For the dents - if this doesn't improve, he treats the area with TCA which flattens the neighboring skin and also stimulates collagen in the dent. It can also be fixed with some needling procedure
- For the suture holes and tracks - he thinks those should fade

Nothing to do for a month though anyway. If I was degloved, I wonder if my surgeon would've taken it all out or just cut the hard parts out. Maybe that would have been better than this piecemeal approach.

*Oh I should add the derm said it will NOT spread. That's bacterial-related Necrosis...or situations where it gets in blood vessels (which has to be directly injected) as we've seen in some journal article pics.

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Re: Scar question (some graphic pics)

11 years 1 month ago #1287701746
Sure - yeah I thought it was pretty interesting. It also gives a little insight into the nodule issue. Some nodules will respond to kenalog (and simply waiting) because they are just inflammatory - and can last a couple months. Others are not going to go anywhere because they are have too much pmma clumped together. There's no way to know unless it's taken out - or if you try kenalog/5fu and wait a month and it does nothing...then you can infer it's not going to reduce. DMSO may have some effect as well on the inflammation. Red1975 had success with that. I'm not sure if it would loosen up the PMMA or not & disperse it...especially with all the other tissue there. But, who knows.

With regard to the white dots, I could be more precise. PMMA itself is clear, so you're just seeing light passing through where the PMMA is. But, yeah in general - it's similar to what you'd see with artecoll (maybe artefill too - it's hard to say exactly):

archderm.jamanetwork.com/article.aspx?articleid=479114 (scroll down to see the histopathology)

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Re: Scar question (some graphic pics)

11 years 1 month ago #1287869173
Restoration wrote: For a guy who is already obsessional about his deformed penis, to see it literally rotting off is about as bad as things can get mentally.

Yeah... for sure this is a problem. I was never ocd about my Dick before 2010 when peyronies started. Then, it grew slowly but never to the point I wanted 7" of Girth or something...it was mostly about getting back what I had. Unfortunately, this period has been dragging on since march 27....after already starting in 2010. At least it is very confined to one spot...but the uncertainty of how it will heal, if it will heal, if it will spread is making me very anxious. I can take my own vicodin...and that's a good idea - I might take it tomorrow. The problem is that cymbalta (which I am on) blunts the effects of everything, it seems. Soma is another seriously relaxing drug, but it stopped working when I started cymbalta. I asked for more benzos...they gave me more cymbalta...which continues to not do anything.

one of our members murdered someone during the stress of recovery from Necrosis

Holy shit...did he have the Necrosis like in those pictures where the whole penis is rotting off? Mine is about 1 cm x 0.5 cm....and the other spots are raised. So, it's annoying that I have (now) raised areas on the skin when before i had lumps under the skin. I guess they should go away... but I just feel like I never should've been in this position. Whatever I did in a past life to get peyronies at such a young age & then be one of the few people on this board with complications on top of it... i'd love to know...oh and then...getting it fixed in the usa (for $1200 so far) hasn't worked either! I keep saying to myself "you'll be normal by june" and "you'll be normal by july" and now it's "maybe august...or the fall..."

Not sure which pictures you mean, but his skin was dying. The photos are on here in his progress report, but I'm not sure it's ethical to point out which member it was, as it's then very easy to find out who he was. Though I doubt it will be a big deal to him as he's in prison for 20 years!

I've been going through what you are describing since 1997. I've literally lost count of the amount of procedures I've had to try and fix things. I've pretty much only got one option left and it scares the hell out of me as it's an invasive surgery with grafts. So many of my surgeries have ended is disappointment and often deformity, that it seems crazy to consider another, as I don't think my penis would hold up to more complications. But on the other hand I can't leave things as they are. I keep saying to myself "by this time next year this will all be behind you," but at the same time can't go through with booking the surgery as I've got a terrible feeling about it! Mentally it's a nightmare.

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Re: Scar question (some graphic pics)

11 years 1 month ago #1287870969
I am sure I am not the only one wondering if he murdered the doctor who performed the failed Phalloplasty surgery ?

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