TOPIC: Miracle8x7's PMMA Progress Report
Re: Miracle8x7's PMMA Progress Report
8 years 4 weeks ago #1304756545- Miracle8x7
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Re: Miracle8x7's PMMA Progress Report
8 years 4 weeks ago #1304758581- Miracle8x7
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Re: Miracle8x7's PMMA Progress Report
8 years 4 weeks ago #1304759181Is there another layer of something, or can you see veins and so on?
In fact, can you see the PMMA?
What does it look like?
You americans have a hell of a time with your health care and work. You should be off and layed up.
Keep strong, really feel for you
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Re: Miracle8x7's PMMA Progress Report
8 years 4 weeks ago #1304760234- Miracle8x7
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Re: Miracle8x7's PMMA Progress Report
8 years 3 weeks ago #1304770656- Mustang2020
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Good healing buddy!
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Re: Miracle8x7's PMMA Progress Report
8 years 2 weeks ago #1304880778- lakingsfan35
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Re: Miracle8x7's PMMA Progress Report
8 years 1 week ago #1304931669Please Log in or Create an account to join the conversation.
Re: Miracle8x7's PMMA Progress Report
8 years 1 week ago #1304945492- Restoration
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I also went to every doctor I could find and tried every treatment imaginable. One was worse than the next until the main Urologist- though he was very agressive. I was treating it as a FBG based on the initial pathologist's diagnosis & initial Dermatologist - but it's not like a silicone FBG (though I took minocycline and did all of those treatments - would be better in your case than mine).
My wounds would not stay closed until large sections of skin were taken off and dissected and cleaned and dissected some more - before being put back together. PMMA is very sticky to the Dartos fascia and the wound wouldn't close with it in there. You could see my doc but he's very aggressive with how much skin he removed. I ended up getting the scrotal webbing "reduction" because I had such little shaft skin left on one side - it was hard to get Erect without pain. So, the web became part of the shaft skin sort of - after that surgery. It wasn't really a reduction in the web - more like they used the web for the shaft. I'm not sure where all of your ulcers are but that's a shortcut way to "graft" skin onto the shaft without taking it from another area that doesn't match.
Yeah that was about 2 years of pure hell. There's no other way to describe it. Peyronie's, like you said, was nothing compared to that period of my life. It never looked entirely normal again, but at least I am not walking around with open wounds anymore. There's no real shortcut - it just takes forever for the body to deal with this. I had some voluma put in to make up for the giant chunks of PMMA my doctor cut out - but the scar bands from the excisions force the voluma into clumps (over months). So, it's not the most natural thing.
There was very little that actually helped, and I had 3 drawers full of every cream, supplement, prescription, etc... xeroform was the only thing that seemed to help a little (3% bismuth tribromophenate petroleum) though you'd have to be careful not to macerate the wound edges with any of these things. Xeroform isn't that wet but some of the other ones are. With MRSA, I assume you've been given mupirocin at this point. I read more of your posts and it sounds like the scrotal webbing reduction / (sliding up of the scrotal skin to give the shaft more skin) isn't going to work given the extent of the Necrosis. The base of my shaft is mostly scrotal skin now (and hairy) and my Balls noticeably smaller...but it helped with the problems after skin Removal.
For people asking what PMMA tissue looks like - it's just like a white sheath of collagen. It looks a little like chewing gum. There are pics I've posted with nodules of PMMA - they looked exactly like gum.
I've been off the board for a while but there's a netflix documentary that made me think of this place - about unproven implants and medical devices called "the bleeding edge" and I just thought of all this again. Oh well Miracle you've been able to sustain a much more positive attitude than I ever was so hopefully that can get you through this. Somehow I got to the end of it & I was single too. I almost don't even remember being depressed - just very angry toward everyone and everything. I don't think I actually recovered from that entirely.
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Re: Miracle8x7's PMMA Progress Report
8 years 1 week ago #1304947240Do you think it is possible to make an incision over a lump, remove the lump and then have the skin heal over?
My vague assumption is that the surgeon have to remove all the PMMA around the perimeter of the wound to allow it to heal. So that there would be a flap of skin, well clear of PMMA around the wound to allow healing. Is this idea right?
I hope everything is working normally for you now.
Sending the love to you too Miracle.
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Re: Miracle8x7's PMMA Progress Report
8 years 1 week ago #1304952482- Restoration
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I finished the Netflix documentary and it's really interesting - and mostly about birth control devices / products used on women that led to them losing fertility, needing hysterectomies, and multiple surgeries to remove (it just reminded me of all this - especially when removing the device caused more issues because it broke apart). One had some kind of vaginal implant that scraped her partner's penis. Another guy got cobalt poisoning from his hip implant.
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Re: Miracle8x7's PMMA Progress Report
8 years 1 week ago #1304957242- lakingsfan35
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Re: Miracle8x7's PMMA Progress Report
8 years 1 week ago #1304965159- Restoration
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If Miracle needs a graft from the forearm or thigh, it's never going to "match" but it will be functional and should put an end to most of this. I don't know what they have in mind with regard to making you wait so long for the tissues to granulate. That is worse than watching paint dry. And sometimes it is 2 steps forward 2 steps back (I had fully granulated tissue just fall right out of the wound to my shock). Docs seem confused about what is granulation tissue and what is eschar, which is a bit annoying and makes the whole thing more complicated.
Can you see a wound care specialist? The one I saw set me straight with a lot of the crap I was putting on there and basically only had me using this water-based gel from there onward (skintegrity hydrogel). Manuka honey completely fucked up the healing & was also painful...the only painful thing, in fact. It's being pushed by far too many people relative to its usefulness IMO. The wound care doc told me to throw it out.
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Re: Miracle8x7's PMMA Progress Report
8 years 1 week ago #1304967069That but about it falling out though.
Nope nope nope nope nope
How are you today Mustang?
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Re: Miracle8x7's PMMA Progress Report
8 years 6 days ago #1304980744Any idea how long silicone allergy can be delayed? I had the smooth finish done 5 months ago and now I'm terrified.
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Re: Miracle8x7's PMMA Progress Report
7 years 11 months ago #1305069502- Mustang2020
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